Day to Day Dealing with Kaiser, Cancer and Chemotherapy

Frustrations

June 21, 2007 · 1 Comment

I have not been able to post for the past few days as I worked to figure out the new anti virus program that I got last week. The program seems to be very effective but at the same time it blocks ALL cookies and signing into WordPress requires a cookie to allow me to do it. Finally this morning I go it figured out, I think. Time will tell.

Yesterday was really exciting. We had some tremendous winds come through the Cove. One whirling dervish was so strong that it wrapped itself around a palm tree and actually forced all the fronds straight up into the air. The dervish did a great job of cleaning the palm tree of all it’s dead leaves and debris but the poor pool guys in the area are going to be very busy cleaning pools for the next few days. Our pool guy, Mitch, spends a couple of hours every day cleaning the pools and he really does not need these winds adding to his work load. I have an old pool screen that I use from time to time to help keep it clean when I can but after that wind storm it is going to take a lot more effort than my little screen to clean the pool out front.

As usual my checks from the state are late. It would seem as if the state feels that those of us on disability are so rich we can afford the delays in getting our income. Fortunately my landlord under stands but the rest of my bills are not quite so understanding. Social Security is far more reliable as they showed this month. I got my first Social Security Disability check exactly on time when the fed said they would send the check. The state has to verify every three months that I am still disabled. This I well understand is caused by the incredible amount of fraud committed against the state when it comes to money but we really need to change the laws in such a way that those of us stricken by a potentially fatal illness such as myself can get through the system a little easier than the current system.

As a result of this delay in the payment I have to delay getting the new recliner and use the money that “AC” donated to me to pay bills and buy food. Once the state check gets to me then I can go looking at new recliners. There are quite a few good chairs available on sale right now but I am sure the same chairs will be there when the checks get straightened out. Unfortunately this verification process occurs every three months but I only have another six months of state disability payments so I should only have to go through this process one more time. After this then all of my income will come from social security and it is clear that the feds have their program together.

I am thinking of moving now also. I really can not afford the housing that I am in now and I am thinking of trying to find a better arrangement that will give me the ability to better use the money that I am going to have to live on. I have several options available to me and over the next few weeks and months I am going to be looking at the various options. One of the more exciting options involves moving into a brand new home nearer to the hospital than I am now. As I look at the various options I will be sure to tell y’all what I find. My motivation towards moving is to find a place where I will truly be comfortable with the least amount of hassles as I survive the disease. And my goal is to survive the disease, make no mistake. I AM going to go against the odds here. I am going to survive longer than previously thought possible. I have one of the best doctors in the field of oncology. He has a staff that is on top of the field as well and that combined with some very good friends and a great support network are all combining to make this experience a tremendously good experience.

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